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€145k raised for family of Irish toddler who died of rare condition in Australia

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€145k raised for family of Irish toddler who died of rare condition in Australia

A major fundraising drive has been launched to support the Irish parents of a young girl who tragically died from a rare genetic condition in Australia earlier this week.

Maisie, who lived in Sydney with her parents – Conor Kehoe from Askeaton in Co Limerick and Danielle O’Sullivan, originally from Kells in Co Meath, died on Monday, unexpectedly from a very rare neurometabolic disorder – Leigh Syndrome.




On the morning of Friday July 5, Maisie suffered a seizure while Danielle was getting ready for work. The little girl was rushed to the hospital via ambulance, but unfortunately, her condition worsened from there.

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Maisie, who was just 17 months old, fought bravely all weekend with Conor and Danielle by her side, but sadly the toddler passed away on Monday evening.

Initially, doctors suspected Maisie had contracted meningitis, but it was later confirmed that she had Leigh Syndrome.

Leigh syndrome is a severe neurological disorder that usually becomes apparent in the first year of life. This condition is characterised by progressive loss of mental and movement abilities and typically results in death within two to three years.

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