Thousands living in Ireland with dangerous ‘Celtic Gene’ that can cause death

UP to 20,000 in Ireland are estimated to be living with a life-threatening condition that can cause organ damage and even death if untreated, it’s been warned.

Haemochromatosis is the most common genetic condition in the country – but not many people even know about it. It is a disorder where large amounts of iron are absorbed from a person’s diet into vital organs.

The “iron overload” can lead to organ damage or even premature death. It’s so common in Ireland that it’s been dubbed the “Celtic Gene” because one in five people carry it and one in 83 are predisposed to develop it

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As part of a worldwide awareness campaign that will take place from June 1 until June 7, The Irish Haemochromatosis Association is urging members of the public to get checked for the condition and said knowing the symptoms could save lives.

Some of the most common include chronic tiredness and joint pain, abdominal pain, and irregular heartbeat.

Trinity College Nursing student Jessica Byrne, who was recently diagnosed with the condition, said: “As a young person with haemochromatosis it is so important for everyone to be aware of what haemochromatosis is.

“It’s so easy to overlook symptoms that can affect your studies and ability to enjoy life.”

The 19-year-old from Dublin added: “My dad has haemochromatosis so I knew to get tested.

“Some of the symptoms that I experienced included chronic fatigue, joint pain, and diabetes.

“The positives are that I can now bring my understanding of managing a life-long condition and living a full life to my future nursing career.”

Dr. Maurice Manning, who lives with haemochromatosis and is current Chair of the Irish Haemochromatosis Association said: “Ireland has more cases than anywhere else in the world, that’s why it is vital that no Irish person should go undiagnosed.

“Our aim is for everyone to understand what Haemochromatosis is and to be aware of its prevalence in Ireland.

“Haemochromatosis, once diagnosed, can be successfully treated and patients go on to live their lives to the full, without any impact.”

“If anyone seeing this campaign and recognises any of the symptoms seek medical advice. Simply make an appointment with your GP and take a blood test. It could make all the difference.”

Dr John Ryan, Consultant in Hepatology and Gastroenterology at Beaumont Hospital, said: “If Haemochromatosis is identified at an early stage, it is easily treatable through venesection.

“Since 2019, many patients can also donate blood through the Irish Blood Transfusion Service, where their blood is desperately needed.

“So finding people with Haemochromatosis and allowing them to donate blood is a win-win situation.”

Former rugby star David Beggy, TV presenter Mark Cagney, and Eurovision winner Paul Harrington all have the condition.

City and County Councils throughout Ireland will light up several iconic public buildings during World Haemochromatosis Awareness Week.

They include the Dublin Convention Centre, Fingal Town Hall, Cork City Hall, Limerick Council Offices, Sligo City Hall, Donegal Public Services Centre and Kerry County Council Buildings, Tralee, Princes Quay and Ashe Memorial Hall Building, Tralee, Killarney Town Hall and Kenmare Courthouse Building, Kenmare, Co. Kerry.

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